Thalassemia major is a genetic disorder that requires very frequent blood transfusion and an iron chelation treatment as well as a multidisciplinary management. Like any chronic disease causes a great impact on quality of life, psychological well-being and family background of these subjects. The medical advances of the last 30 years have improved the life expectancy of these patients who now may reach adulthood, have a work, have children, but they need a constant compliance to treatment. The aim of this work it to review the results of the last 10 years of research in relation to psychosocial difficulties of patients and families, the quality of life and the presence of psychopathology in thalassemic patients, also across different cultural contexts. The data emerging from the review show a greater level of psychopathology compared with control subjects and a lower quality of life for both patients with thalassemia and their family members, suggesting a greater effort towards the spread of psychosocial interventions that already exist in some situations

Bani, M., Barile, F., Mazza, U. (2013). La dimensione psicosociale nella cura della talassemia: una rassegna della letteratura. PSICOLOGIA DELLA SALUTE(1), 5-26 [10.3280/PDS2013-001001].

La dimensione psicosociale nella cura della talassemia: una rassegna della letteratura

BANI, MARCO;
2013

Abstract

Thalassemia major is a genetic disorder that requires very frequent blood transfusion and an iron chelation treatment as well as a multidisciplinary management. Like any chronic disease causes a great impact on quality of life, psychological well-being and family background of these subjects. The medical advances of the last 30 years have improved the life expectancy of these patients who now may reach adulthood, have a work, have children, but they need a constant compliance to treatment. The aim of this work it to review the results of the last 10 years of research in relation to psychosocial difficulties of patients and families, the quality of life and the presence of psychopathology in thalassemic patients, also across different cultural contexts. The data emerging from the review show a greater level of psychopathology compared with control subjects and a lower quality of life for both patients with thalassemia and their family members, suggesting a greater effort towards the spread of psychosocial interventions that already exist in some situations
Articolo in rivista - Articolo scientifico
thalassemia, psychopathology, caregiver, coping, quality of life
Italian
5
26
22
Bani, M., Barile, F., Mazza, U. (2013). La dimensione psicosociale nella cura della talassemia: una rassegna della letteratura. PSICOLOGIA DELLA SALUTE(1), 5-26 [10.3280/PDS2013-001001].
Bani, M; Barile, F; Mazza, U
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/10281/69021
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