Colon cancer is one of the most prevalent malignancies in Western countries, with survival rates varying significantly across regions. In order to combine cancer registry records with real-world data, deterministic methods are applied to link data from three Italian regions. Our colon cancer patients are prevalent and their incidence dates range from 1995 to 2019. They were anonymized with a time-ending common identification key not more renewable. Care indicators are formulated to capture key stages of the patient pathway (diagnosis, treatment and end-of-life care), drawing inspiration from the Innovative Partnership for Action Against Cancer (IPAAC) study. An exploratory analysis is conducted and nonparametric Kaplan-Meier estimations are applied to obtain an initial overview of patients‘ disease trajectories. Colon cancer patients in Friuli-Venezia Giulia, Naples and Palermo exhibit notable regional differences in screening participation and initial-phase endoscopy utilization.
Daidone, C., Lillini, R. (2025). Colon Cancer: an Integration of Real World Data into Cancer Registries. Intervento presentato a: 14th Nordic Public Health Conference, Gothenburg, Sweden.
Colon Cancer: an Integration of Real World Data into Cancer Registries
Caterina Daidone;Roberto Lillini
2025
Abstract
Colon cancer is one of the most prevalent malignancies in Western countries, with survival rates varying significantly across regions. In order to combine cancer registry records with real-world data, deterministic methods are applied to link data from three Italian regions. Our colon cancer patients are prevalent and their incidence dates range from 1995 to 2019. They were anonymized with a time-ending common identification key not more renewable. Care indicators are formulated to capture key stages of the patient pathway (diagnosis, treatment and end-of-life care), drawing inspiration from the Innovative Partnership for Action Against Cancer (IPAAC) study. An exploratory analysis is conducted and nonparametric Kaplan-Meier estimations are applied to obtain an initial overview of patients‘ disease trajectories. Colon cancer patients in Friuli-Venezia Giulia, Naples and Palermo exhibit notable regional differences in screening participation and initial-phase endoscopy utilization.| File | Dimensione | Formato | |
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