Internet forums represent a useful but understudied resource to understand psychosocial aspects of living with systemic lupus erythematosus. This study was aimed to describe the demand/supply of social support through the Internet in relation with the description of personal illness experiences. All the posts (118) from an Italian forum for systemic lupus erythematosus patients were collected and analyzed combining qualitative content analysis with statistical textual analysis. The results showed different purposes for posts: starting new relationships, seeking information, receiving emotional support, and giving a contribution. Lexical analysis identified three ways of describing patients’ experiences. Discussion focuses on the relationship between the requested/offered support and systemic lupus erythematosus experiences.

Mazzoni, D., Cicognani, E. (2014). Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus. JOURNAL OF HEALTH PSYCHOLOGY, 19(5), 689-696 [10.1177/1359105313477674].

Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus

Mazzoni, D;
2014

Abstract

Internet forums represent a useful but understudied resource to understand psychosocial aspects of living with systemic lupus erythematosus. This study was aimed to describe the demand/supply of social support through the Internet in relation with the description of personal illness experiences. All the posts (118) from an Italian forum for systemic lupus erythematosus patients were collected and analyzed combining qualitative content analysis with statistical textual analysis. The results showed different purposes for posts: starting new relationships, seeking information, receiving emotional support, and giving a contribution. Lexical analysis identified three ways of describing patients’ experiences. Discussion focuses on the relationship between the requested/offered support and systemic lupus erythematosus experiences.
Articolo in rivista - Articolo scientifico
SYSTEMIC LUPUS ERYTHEMATOSUS; SOCIAL SUPPORT; CHRONIC ILLNESS; INTERNET; QUALITATIVE RESEARCH
English
2014
19
5
689
696
reserved
Mazzoni, D., Cicognani, E. (2014). Sharing experiences and social support requests in an Internet forum for patients with systemic lupus erythematosus. JOURNAL OF HEALTH PSYCHOLOGY, 19(5), 689-696 [10.1177/1359105313477674].
File in questo prodotto:
File Dimensione Formato  
2014_Mazzoni_Cicognani_JHP.pdf

Solo gestori archivio

Tipologia di allegato: Author’s Accepted Manuscript, AAM (Post-print)
Dimensione 327.24 kB
Formato Adobe PDF
327.24 kB Adobe PDF   Visualizza/Apri   Richiedi una copia

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.

Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/10281/218915
Citazioni
  • Scopus 33
  • ???jsp.display-item.citation.isi??? 27
Social impact