Background: Population-based registries implement the comprehensive collection of all disease events that occur in a well-characterized population within a certain time period and represent the preferred tools for disease monitoring at a population level. Main characteristics of a Population-based registry are to provide answers to defined research questions, also related to clinical and health policy purposes, assuring completeness of event identification, and implementing a process of case adjudication (validation) according to standardised diagnostic criteria. Methods: The application of a standard methodology results in the availability of reliable and comparable data and facilitates the transferability of health information for research and evidence-based health policies. Although registries are extremely useful, they require considerable resources to be implemented and maintained, high cost and efforts, to produce stable and reliable indicators. Results: Thanks to available health information and information technology, current administrative databases on hospital admissions and discharges, medication use, in-patient care utilization, surgical operations, drug dispensations, ticket exemption and invasive procedures are increasingly available. They represent basic sources of information for implementing Population-based registries. Main strengths and limitations of Population-based registries are described taking into consideration the example of cardiovascular diseases, as well as future challenges and opportunities for implementing Population-based registries at European level. Conclusions: The integration of population-based registries and current administrative health databases may help to complete the picture of the disease rebuilding the evolution of the disease as a continuum from the onset to the possible consequent complications.
Palmieri, L., Veronesi, G., Corrao, G., Traversa, G., Ferrario, M., Nicoletti, G., et al. (2018). Cardiovascular diseases monitoring: Lessons from population-based registries to address future opportunities and challenges in Europe. ARCHIVES OF PUBLIC HEALTH, 76(1) [10.1186/s13690-018-0283-3].
|Citazione:||Palmieri, L., Veronesi, G., Corrao, G., Traversa, G., Ferrario, M., Nicoletti, G., et al. (2018). Cardiovascular diseases monitoring: Lessons from population-based registries to address future opportunities and challenges in Europe. ARCHIVES OF PUBLIC HEALTH, 76(1) [10.1186/s13690-018-0283-3].|
|Tipo:||Articolo in rivista - Articolo scientifico|
|Carattere della pubblicazione:||Scientifica|
|Presenza di un coautore afferente ad Istituzioni straniere:||No|
|Titolo:||Cardiovascular diseases monitoring: Lessons from population-based registries to address future opportunities and challenges in Europe|
|Autori:||Palmieri, L; Veronesi, G; Corrao, G; Traversa, G; Ferrario, M; Nicoletti, G; Di Lonardo, A; Donfrancesco, C; Carle, F; Giampaoli, S|
|Data di pubblicazione:||2018|
|Rivista:||ARCHIVES OF PUBLIC HEALTH|
|Digital Object Identifier (DOI):||http://dx.doi.org/10.1186/s13690-018-0283-3|
|Appare nelle tipologie:||01 - Articolo su rivista|