Introduction: The health-related quality of life in X-linked agammaglobulinemia was investigated in 25 children and adolescents patients through the Italian version of Pediatric Quality of Life Inventory 4.0 Generic Core Scale for patients aged less then 18 years, comparing child perception to that of the parents and the physician's evaluation. The data were compared with the ones of 80 healthy controls and the literature data of a group of patients with rheumatic diseases. Discussion: The agammaglobulinemia subjects perceived a lower global quality of life than the healthy subjects, but significantly higher than the rheumatic diseases controls. The clinical relevance of health-related quality of life assessment in X-linked agammaglobulinemia pediatric patients is discussed. © 2008 Springer Science+Business Media, LLC.

Soresina, A., Nacinovich, R., Bomba, M., Cassani, M., Molinaro, A., Sciotto, A., et al. (2009). The quality of life of children and adolescents with X-Linked Agammaglobulinemia. JOURNAL OF CLINICAL IMMUNOLOGY, 29(4), 501-507 [10.1007/s10875-008-9270-8].

The quality of life of children and adolescents with X-linked agammaglobulinemia

NACINOVICH, RENATA;NERI, FRANCESCA;
2009

Abstract

Introduction: The health-related quality of life in X-linked agammaglobulinemia was investigated in 25 children and adolescents patients through the Italian version of Pediatric Quality of Life Inventory 4.0 Generic Core Scale for patients aged less then 18 years, comparing child perception to that of the parents and the physician's evaluation. The data were compared with the ones of 80 healthy controls and the literature data of a group of patients with rheumatic diseases. Discussion: The agammaglobulinemia subjects perceived a lower global quality of life than the healthy subjects, but significantly higher than the rheumatic diseases controls. The clinical relevance of health-related quality of life assessment in X-linked agammaglobulinemia pediatric patients is discussed. © 2008 Springer Science+Business Media, LLC.
Articolo in rivista - Articolo scientifico
Agammaglobulinemia
English
501
507
Soresina, A., Nacinovich, R., Bomba, M., Cassani, M., Molinaro, A., Sciotto, A., et al. (2009). The quality of life of children and adolescents with X-Linked Agammaglobulinemia. JOURNAL OF CLINICAL IMMUNOLOGY, 29(4), 501-507 [10.1007/s10875-008-9270-8].
Soresina, A; Nacinovich, R; Bomba, M; Cassani, M; Molinaro, A; Sciotto, A; Martino, S; Cardinale, F; De Mattia, D; Putti, C; Dellepiane, R; Felici, L; Parrinello, G; Neri, F; Plebani, A
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/10281/15941
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